Happy New Year!

Hello to the new year!

2023 is here and we’re so excited to share our plans for the coming year.

But first, let’s catch up with what the SuperCaptainBraveMan team did in 2022!

This year, Kyle turned 16. And by the end of the year, he has grown to an amazing 4 feet 4 inches. Which means that sooner rather than later, he’ll be taller than both Nurse Brigette and Nurse Leah!

2022 was a year of collaborations for us.

Partnering with O & P in Motion, 2 murals featuring SuperCaptainBraveMan are now proudly displayed on the outside of their Los Angeles location.

We also had the privilege to collaborate with Marc Laver and his initiative, Jonnie and Friends. This inspiring initiative led the restoration of Universal Universe’s All Access Playground. We are so thankful and honored to be part of such a lovely project.

And we here at SuperCaptainBraveMan want to send out a special thanks to Fenton Primary School for hosting our first live book reading since the pandemic. We love sharing our stories with kids and have missed seeing all of the excited faces live and in person.

New Year, New Merch!

We’ve added more items to our shop! In addition to our T-shirts, you can now order hats, beanies, PJ pants, and “One Brave Kid” shirts. Even our four legged friends can get their SuperCaptainBraveMan on with our doggie kerchiefs featuring Mochi!

Head over to our shop to grab some garb to dress in SuperCaptainBraveMan head to toe!

This year—more than most—reminded us all that we are beyond grateful for each and every one of you. Your support, comments, and likes mean the world to us.

Our continued love for creative stories that showcase inclusivity are at the heart of everything we do. From diabetes to Down Syndrome, SuperCaptainBraveMan strives to teach kids about kindness, empathy, and the power to connect to the superhero inside.

Happy 2023!

Comment below with your New Year’s resolutions and hopes for the coming 12 months.

Stay safe and stay brave, SuperCaptainBraveFAM!

May is Asian American and Pacific Islander Heritage Month

Hello, SuperCaptainBraveFAM!

Nurse Leah, here.

Did you know that May is Asian American and Pacific Islander Heritage Month?

Many members of our team are part of the diverse and rich cultures that make up the AAPI community. From author and co-creator Jennifer Norman’s Korean heritage, to the deep Filipino roots myself and illustrator, Victor Lodevico share…

To Kyle, the inspiration for SuperCaptainBraveMan, whose parents gifted him with the magnificent tapestry and interweaving of their Korean and African-American cultures.

We are part of the AAPI Community.

This past year has been difficult for many reasons. Heartbreaking for many more. And yet, there is always hope. I, personally, see this hope in the growing generation of people willing to wear their compassion for others proudly and without fear. Those willing to stand up and bring about change not only for themselves, but for the people around them. Those willing to reach out and share their experiences to foster understanding and empathy.

While this subject is one that is difficult to discuss with kids, we are creators for a book series hoping to begin difficult discussions with children & their parents about differently abled people. As such, we encourage parents, teens, and children to learn more about the experiences of the people in their communities. And since it is Asian American and Pacific Islander Heritage month, why not start with the experiences we have here in the US?

We stand with the AAPI Community.

One of the core beliefs of the SuperCaptainBraveMan series has always been that of inclusiveness and empathy.

Whether differently abled, neurodiverse, or one of the many brilliantly varied cultures that call Earth home, in our hearts, we believe that all anyone wants and deserves is to be treated with respect, kindness, and compassion.

We are part of the Global Community.

To learn more about Asian American and Pacific Islander Heritage month visit

https://asianpacificheritage.gov/

To find out more about Asian American and Pacific Islander heritage, check out the kid’s books listed here:

• 24 Beautiful Kids’ Books that Reflect the Asian American Experience

Read a very personal and semi-autobiographical children’s book about growing up as a first generation Filipino in America in the book

Someone Said Written by Leah Lodevico, Illustrated by Victor Lodevico

Approach the subject of anti-Asian hate with your children with a free download of the book

A Kid’s Book About Anti-Asian Hate Written by Kim Pham

As SuperCaptainBraveMan shows us, although we may look different on the outside, we all share one common super power: Kindness!

So, SuperCaptainBraveFAM,

Stay Safe,

Stay Brave,

And Stay Kind.

Be sure to subscribe to our blog and follow us on Facebook and Instagram for upcoming news, pictures, and posts!

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Going on a Day Trip

Hello SuperCaptainBraveFAM!

Disclaimer: Please be aware that the information below is based on our own experiences and, to our knowledge, correct as of January 2020. Procedures and facilities may change when locations re-open.

Once upon a time, and in a soon-to-be time once again, we went on day trips with Kyle. Living in Southern California, there are many sights to see and places to visit.

Learning about the space shuttle Endeavor at the California Science Center.

We’ve been to the Getty Villa and learned about Greek and Roman artwork. We’ve taken Kyle to the zoo, the Natural History Museum, and our local outdoor theater to watch “A Midsummer Night’s Dream”.

But it’s not just about trips that make any school field trip planner proud. It’s about pure fun, too.

We visit pop up art locations, local amusement parks like Universal Studios and the Disneyland Resort, and—more recently—drive through exhibits like the Holiday Road light show this past Christmas.

Visiting Disneyland in 2018

But for all of these trips, research had to be done to find out the usual details. Where is it located? How much are tickets? Are there tickets? Will we have to pay for parking? Where are the First Aid Stations? Where are the elevators? Are there elevators? Will there be grounded outlets available in case our batteries need to be recharged?

Every family has a checklist. And yours might not include the last 4 on ours. But if it does, I’m here to share some of the tips and tricks we’ve learned over the years to make day trips as fun and safe as possible.

The question at the top of our travel list is always: how long will we be out?

As a ventilator and oxygen dependent child, the amount of battery life and oxygen in his tanks is limited. We’ve definitely had to brush off some math skills to calculate how long an oxygen tank will last on a trip and how many tanks we should bring with us. Along with how many tanks are allowed at any particular venue.

Our rule of thumb is bringing at least 2 extra oxygen tanks when we go out for the day. Depending on where we’re going, oxygen tanks might not be allowed. So, we’ve had to check online and call different locations if we have any questions.

Nurse Brigette with extra oxygen tanks for the day.

Luckily, this information is relatively easy to find out. The majority of locations—museums, amusement parks, even pop-up exhibits—have a “Contact Us” page with an email and phone number. All we have to do is ask our questions.

I can only remember one instance where having an oxygen tank with us posed a bit of a problem. And the issue had to do with a pyrotechnic aspect of the show we watched. The team member I spoke to was extremely helpful in explaining what alternatives were available to us. And we all got to watch the show—with Kyle using his portable oxygen concentrator for a short while in lieu of his oxygen tank.

Another question we need answered when we go out is: how accessible is the location?

Watching The Nightmare Before Christmas LIVE! @ the Hollywood Bowl, Oct. 2018

Thanks to the Americans with Disabilities Act, many buildings have wheelchair access. Disabled parking spaces, ramps, and elevators are among the things we look for when considering a place to visit.

A prime example of how different locations adapt to these accessibility concerns is the movie theater. Kyle loves watching movies and live shows in the theater. And of all the theaters we’ve visited, several are definitely higher on our list of “theaters to visit”.

In the age of online ticket purchasing, I’m sure many of you have had to pick your seats among a grid of colored squares. And on this grid, you’ll find specialized wheelchair and wheelchair companion seats.

Some movie theaters might have these seats on “ground level” or the same level as the entrance to the theater. Some have them in the back row—if the entrance to the theater is near the back row of seats. Some have the seats at or near the very front right by the screen.

And some—like Kyle’s favorite movie theater—have seating near the top of the theater and is accessible through special elevators and hallways.

There were a few times the elevators malfunctioned. These things happen. And each time, the staff at the movie theater did their best to offer us alternatives ranging from ticket vouchers to another showing, to ticket exchanges to a different movie in a theater we could access, to the option of an escort for using the service elevator instead.

Excited to watch Black Panther at our favorite movie theater

Using the service elevator was fun. Every kid has a dream of exploring a cave system at least once in their life. And travelling the echoing, bare cement back hallways of a movie theater was definitely the 21st century equivalent of a cave system. One that smelled of popcorn.

These options were offered to us when we asked what we could do next. So, don’t be afraid to call your local movie theater—when it’s safe to watch movies in theaters again—and ask any questions you have.

Question 3 on our checklist is: where are the First Aid Stations?

It’s along the lines of knowing your fire exits. If you need emergency care, or a quiet place to care for the needs of your child, or a place to store medication that needs to be refrigerated, then knowing where the First Aid Stations are is an important part of going on a day trip with a special-needs member in your group.

When visiting places like museums or theaters, there might not be a dedicated area for first aid that has a qualified employee that can help. In that case, we make sure that we have what we might need with us and that it’s stuff we can carry comfortably.

Jennifer Norman and Kyle at KCON 2017

Being half-Korean, Kyle and his mom, SuperCaptainBraveMan author Jennifer Norman, attended KCON in 2017 with some of his nursing team. KCON is the world’s largest fan celebration of Korean culture and music. And was held that year at the Los Angeles Convention Center. While there, the staff showed us to the First Aid room and were very responsive to our questions during the K-Pop performances at the nearby Staples Center. (The elevators used to get to the seating area are pretty cool.)

Amusement & theme parks, convention centers, and sports complexes often have dedicated First Aid Stations staffed by qualified employees like EMTs, LVNs/LPNs, or even RNs.

The Disneyland Resort, for instance, has a First Aid Station in both parks staffed by Registered Nurses. Universal Studios Hollywood also has one adjacent to the Animal Actors amphitheater in the Upper Lot and a second one in the Lower Lot. There is also an active LAFD Fire Station on the Universal Studios property.

In both cases, we stopped by each First Aid Station and filled out paperwork outlining our equipment and supplies. In the case of Disneyland, we were allowed to store our extra oxygen tanks at the First Aid Station. While there, we were also given a list of rides/attractions that were wheelchair accessible—which was a longer list than I’d anticipated, TBH. (More about that in a future post.)

These stations were also a good place for some quiet when the excitement of the day came close to overstimulating Kyle. But I wouldn’t recommend camping out on a bed when it might be needed for another person. Heat stroke is definitely no joke.

There are usually several semi-hidden spots in theme parks for overstimulated kids and their parents to hang out and rest. Be sure to ask at the ticket counter or guest services and they’re sure to offer a few suggestions. Facebook groups and similar online forums are a good place to ask for specific attractions and events local to you.

Now, it seems like it’s been ages since many of us have gone on a vacation or even a day trip. For many, it was as simple as picking a place to go, making sure we were dressed correctly for the activity, pack a snack, and getting in the car.

For those living adaptive lives and their families, a day out might have a few more steps, but those steps lead to a heap of fun.

What tips and tricks do you use when planning day trips with your family? Comment down below or share them with us on our Facebook page.

As always, stay safe and stay brave, SuperCaptainBraveFAM!

Kyle's decorated stateroom door on our 2019 Disney cruise

Blog preview:

We are a big Disney family. And Kyle has visited Disneyland on multiple occasions and even went on a Disney cruise in 2019! I’ve got a whole blog series planned about our trips, including how we managed a 3-day stint at sea.  

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